Multi-stakeholder Alliance
The multi-stakeholder Alliance is governed by principles and values that underpin the joint working interactions, as well as the objectives and modus operandi for TRANSFORM.
Members
EFNA – European Federation of Neurological Associations
RI – Retina International
WDO – World Duchenne Organization
IPOPI – International Patient Organisation for Primary Immunodeficiencies
TIF – Thalassaemia International Federation
EHC – European Haemophilia Consortium
EURORDIS – Rare Diseases Europe
EPTRI – European Paediatric Translational Research Infrastructure
CCI Europe – Childhood Cancer International Europe
SIOP Europe – the European Society for Paediatric Oncology
EAHAD – European Association for Haemophilia and Allied Disorders
EU EYE – European Alliance for Vision Research and Ophthalmology
EUCOPE – European Confederation of Pharmaceutical Entrepreneurs
Observers
European Medicines Agency
In individual capacity:
- Marc Dooms, Senior Orphan Drug Pharmacist, University Hospitals Leuven
- Stuart Faulkner, Programme and Operations Manager at the Center for the Advancement of Sustainable Medical Innovation (CASMI), Oxford University